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KnowIMCD Idiopathic multicentric
Castleman disease (iMCD)

FIND SUPPORT

Patient
portrayal.

Connect with others in the iMCD community

For people living with or caring for someone with iMCD, the road to diagnosis can be long and exhausting. Having the support of others who have been through a similar journey and understand iMCD can make a big difference.

Diary tracker icon

Tracking symptoms

 

If you or a loved one have been diagnosed with
iMCD, this diary can help you manage symptoms.

Download iMCD Diary

Advocacy groups

There are various websites and social media channels where you can connect with others who understand the challenges of living with or caring for someone with a rare disease like iMCD and begin to build a support system. We encourage you to explore the below groups to stay up to date on the latest developments in the fight against iMCD.

Castleman Disease Collaborative Network (CDCN) is a global initiative dedicated to accelerating research and treatment for Castleman disease.
 

National Organization for Rare Disorders (NORD) is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.

Global Genes was established to connect, empower, and inspire the rare disease community.
 

RareConnect is a place where rare disease patients can connect with others globally.
 

Facebook Groups icon

Facebook groups are a great way to connect with other people living with iMCD. Each group has something unique to offer, whether you are looking for support, community, or education:

Castleman Disease
Support Group
Visit
International Castlemans
Disease Organization
Visit
The content and discussions in the above-mentioned websites and Facebook groups reflect the views of the people managing or participating in them. KnowiMCD.com bears no responsibility for the accuracy of the website content or the comments made in the groups and will bear no responsibility or legal liability for discussion postings. Please respect the rights and feelings of the participants while interacting with others.
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ACCELERATE Patient Registry

 

ACCELERATE is a registry created and maintained by the University of Pennsylvania that collects medical data about people suffering from Castleman disease. The information is then shared with researchers and doctors, with the goal of improving treatments and treatment plans.

ACCELERATE Patient Registry. Learn More

Frequently Asked Questions (FAQs)

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